My mother is losing her sight. It’s an insult to injury kind of thing, after dealing with my dad and his Alzheimer’s, breaking a hip, going to assisted living and moving back home. Her odyssey started the day before Thanksgiving last year, when she fell on the ice three steps outside her back door and broke her hip. From there to the hospital to rehab to home to the nursing home to assisted living to home to again. All in less than a year.
We’ve tried different approaches to address her living situation, based on a consistent theme: keeping her safe. We used that logic to convince her (well, she’s never been convinced, but she gave in) to move my dad to a memory unit, to finally move to assisted living in the same building as my dad and as the reason for our reluctance to let her move back home. Although assurance of safety sounds absolute, it has been more of a negotiation tool, a variable that has led to a series of temporary moves and stop gap measures. And she’s still not safe. Sure, she isn’t crushed under the weight of caring for my dad, she’s mostly recovered from a broken hip and she has a caregiver to help her out a few hours each day, but that doesn’t really do it.
She’s bound and determined not to return to assisted living under any circumstances, “I’m never going back to that place,” she adamantly and constantly reminds us. So she’s reluctant to tell us when she has a mishap, for fear that we’ll ship her back to that place which, I guess, is a fate worse than death. So when she’s fallen or forgotten to turn off the water (which caused a flood in the bathroom) or heard the doorbell at 2:30 in the morning, she’d prefer we not know.
But now, with her eyesight failing after a detached retina in one eye and macular degeneration in the other, she is less safe than ever. And bad eyesight is a risk for falls or misreading directions or operating appliances incorrectly or failing to maintain awareness of her surroundings. Try as I may, I can’t fully understand why living at home is The Thing. After all, it entails elaborate arrangements, a driver to shuttle her back and forth to the memory unit daily, an unsettled feeling for me and my sisters and one concession after another on our part, as additional risks and concerns come to light.
But she’s home and she can only use the main floor, someone else does the cooking, the cleaning, the wash and her medication dispensing. She can’t visit my dad without a ride and probably won’t be able to go at all when her sidewalk is icy. And if she needs immediate assistance, well, immediate isn’t available.
So we’ll try to monitor the safety risks caused by her failing vision and try not to feel like we’ve sold out, by letting her live at home. But this is her last bite of the apple, I’m sorry to say. Any major malfunction (not sure how we’ll define that) and the odyssey continues, most likely to assisted living, despite her protests. While I don’t look forward to that, I pretty much expect it.
Until then, we’ll plod along as we always have, make necessary adjustments and hope for the best. Maybe at some point she will realize that being safe should count for something and that assurance of her safety would be a comfort to us. There are times I harken back to her telling me I couldn’t do something just because she said so, followed by “and it’s for your own good.” If I thought that would work, I’d give it a shot.